Family Bingo Night fundraiser to raise money for Research of a poorly diagnosed and recognized disorder - Phoenix Arizona News
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Family Bingo Night fundraiser to raise money for Research of a poorly diagnosed and recognized disorder

October 14 , 2007 by Editor

Four Hundred (400) area residents will come together to raise money for research of a poorly diagnosed and recognized disorder.  The Arizona APFED support group will host a Family Bingo Night Fundraiser on Saturday, October 20, 2007 from 6:00pm to 9:00pm at the Red Mountain Multigenerational Center in Mesa, AZ.   Their goal is to increase awareness and raise money for research of Eosinophilic Gastrointestinal Disorders (EGID).  All proceeds from the event will benefit the Hope of the Horizon Research Fund, overseen by the American Partnership for Eosinophilic Disorders (APFED).

Eosinophilic Gastrointestinal Disorders, EGID, are distinct dysfunctions affecting the gastrointestinal tract, which render the patient unable to digest food proteins.  Recent demographic studies estimate that 1:2000 pediatrics is living with Eosinophilic Esophagitis, in which only the Esophagus is affected and 1:10,000 pediatrics is living with EGID, which affects any or all of the rest of the GI tract.  Statistics on the adult population are currently unknown. As the medical community becomes more aware of Eosinophilic Disorders, these numbers are expected to rise dramatically. Due to the lack of education of the Medical Community and the general public of these disorders, it is currently taking patients 2 to 4 years of suffering to be able to obtain an accurate diagnosis and receive proper treatment.  More often than not, these disorders are misdiagnosed as other issues, such as Reflux disease. Treatments for these disorders include total food elimination, requiring patients to live off an elemental formula which can be taken either orally or via a feeding tube; limited/restricted diets; and/or steroid treatments. There is currently no cure for EGID.

The Event is now closed to the public, as all tickets have been sold.  Attendance is expected to be 400 participants.  Prizes, donated by area merchants, such as gift cards and gift baskets, will be given away to winners.   Sponsors for the Bingo include: Title Sponsors PhoneZone and T-Mobile, and additional sponsors including Lattimer PC, Fun Sweets and Party Essentials.

For more information on Eosinophilic Disorders, APFED, Hope on the Horizon Research Fund, or to support the Bingo, please visit www.apfed.org.

American Partnership for Eosinophilic Disorders (APFED) is a non-profit organization dedicated to patients and their families coping with eosinophilic disorders.  APFED strives to expand education, create awareness, and support research while promoting advocacy among its members.




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